PREFACE
In some ways, this book is an academic version of
the
classic movie, "King Kong meets Godzilla." King-Kong is played by
the
health care sector. Central casting’s choice is sound; the
national
health care sector can easily play the proverbial 800-pound gorilla
that
must not be ignored when he occupies a seat at important policy
discussion tables. In the U.S. alone, health expenditures tip the
scales at 1.3 trillion dollars and is projected to balloon to a yet
more impressive 2 trillion dollars
before the decade is out (U.S. Census Bureau, 1999). In fact, it is the
largest
sector in the U.S. economy. And the importance of health to Americans
is
not something that can be measured by money alone. It is a high
priority
to all Americans; simply, we cannot live without it.
In the other corner is the Godzilla-like
Internet.
We could easily venture that the Internet is the first new mass medium
in
a half-century. But we go further. We propose that it, like
Godzilla,
is unprecedented. Godzilla, the reader may recall, is a not entirely
seamless
amalgamation of pre-existing creatures, but is also endowed with a
generous
mixture of unprecedented and, one might add, common-sense-defying,
powers.
The Internet too is something that has been both been seen before but
also
has unexpected and common-sense-defying powers. In a few short years,
the
Internet has sprouted from a handful of kluged computer networks to a
frenetic
monster that embraces half the U.S. population. As such, it is sui
generis,
the first "many-to-many" medium, as opposed to “one-to-many” media
(such
as TV) or “one-to-one” (such as the telephone).
The focus of our book, to continue the movie
analogy,
is the “meeting” of these two colossal beasts. As they embrace, the
stakes
are enormous, and are ones in which we are all vested. Given the
magnitude
of the event, we have necessarily taken only a narrow perspective on
the
interaction of these two powerhouses: that of communication issues.
This is not a "how to" book nor a book offering
practical
advice to the public or physicians about finding and using a medical
information
on the Internet. It is, instead, an attempt by academics for academics,
students,
researchers and health professionals to explore the communication
issues
related to the consequences the Internet is having on healthcare as
well
as the way the exigencies of healthcare are affecting the use of the
Internet.
The gap we see in the literature on this area is
an
analysis of the way people actually use the Internet in pursuit of
health
care, with what consequences and implications. That is, few have
probed
what can be learned about human communication behavior when we look at
the
practice of medicine and the pursuit of health on the Internet.
At
this point, we know little about how traditional modes of human
behavior are
changing, and what might remain the same, as considerable personal and
economic
resources are shifted from traditional to electronic sites of health
care
delivery. Will the previously successful appeals to change
behavior
aimed at promoting good health be as effective in cyberspace?
What
new appeals will succeed? What policy questions need to be
resolved so that the fruits of Internet health care can be harvested
while avoiding further tragedies and abuse? How can social
science theory enlighten us about communication issues in this brave
new environment? By drawing on dispassionate and rigorous
analysis experiences to date, we will better know what to expect for
the future.
A unique aspect of the book is that we look at a
variety
of settings and groups to grasp the diverse nature and impact of the
Internet's
use for health care. As a result, we believe our volume should help
cross
boundaries that have heretofore prevented greater progress both in
understanding
human communication behavior, and in turning that understanding to the
benefit
of the public’s health.
This book is one of the first to apply systematic
empirical
tools to analyze the dramatic changes in health care associated with
the
Internet. Rather than being based primarily on ad hoc analyses or
speculation,
the authors have sought to ground the volume firmly in research.
The
book covers the gamut of activities from social interaction to
e-commerce,
and from regulatory regimes to web site development and evaluation.
Some courses will use this book as their primary
text.
These include college and graduate school courses that examine the
Internet
and electronic commerce, telecommunications, health communication, and
communication
campaigns. Nearly all research-caliber-university libraries would
want
to acquire a copy. We would also expect strong interest from
professional
audiences including health care and hospital administrators, federal
and
local policymakers, health care-oriented business people, and
entrepreneurs
interested in offering services. Finally, it seems quite likely
that
many physicians, social science researchers and communication
professionals
would want to read this book to develop a broader understanding of the
many
relationships between the Internet and health communication.
Thus, what we have to say should be of both
practical and conceptual significance to the provider community, the
interested general reader, the health care entrepreneur and
policymaker, the researcher, the teacher, and the student.
TABLE OF CONTENTS
SECTION I: AN OVERVIEW OF EXPERIENCES AND EXPECTATIONS
OVERVIEW
THE INTERNET AND HEALTH COMMUNICATION:
A FRAMEWORK OF EXPERIENCES
Ronald E. Rice
THE FUTURE OF THE INTERNET IN HEALTH CARE:
A RANGE OF EXPECTATIONS
Robert Mittman and Mary Cain
SECTION II: SOURCES OF AND EXPERIENCES WITH ONLINE MEDICAL INFORMATION
OVERVIEW
CONSUMER USE OF MEDICAL INFORMATION FROM ELECTRONIC AND PAPER MEDIA:
A
LITERATURE REVIEW
Philip M. Napoli
ASSESSMENTS OF QUALITY OF HEALTH CARE INFORMATION AND REFERRALS TO
PHYSICIANS:
A NATIONWIDE SURVEY
Philip Aspden and James E. Katz
USE OF THE INTERNET FOR PROFESSIONAL PURPOSES:
A SURVEY OF NEW JERSEY PHYSICIANS
Philip Aspden, James E. Katz and Ann E. Bemis
EXPECTATIONS AND EXPERIENCES OF INFERTILITY INFORMATION SEEKING VIA
THE
INTERNET AND TELEPHONE DIRECTORY
June Anigbogu and Ronald E. Rice
SECTION III: EXPERIENCES DEVELOPING AND EVALUATING HEALTH INFORMATION SITES
OVERVIEW
USING THE WEB TO ASSIST COMMUNITIES IN PUBLIC HEALTH CAMPAIGN
PLANNING: A CASE STUDY OF THE REACT PROJECT
John Finnegan, Jr., Deborah Alexander, Jason Rightmyer, Bernadette
Gloeb,
Melinda Voss, Barbara Estabrook, Laura Leviton, and Russell V. Luepker
EVALUATING A FEDERAL HEALTH-RELATED WEB SITE: A MULTI-METHOD
PERSPECTIVE ON MEDICARE.GOV
Sid Schneider, Joy Frechtling, Timothy Edgar, Barbara Crawley, and
Elizabeth
A POUND OF CURE: A CONTENT ANALYSIS OF HMO WEBSITE HEALTH INFORMATION
Elizabeth Witherspoon
A COMPARATIVE FEATURES ANALYSIS OF PUBLICLY ACCESSIBLE COMMERCIAL
AND
GOVERNMENT HEALTH DATABASE WEB SITES
Ronald E. Rice, Michael Peterson and Robert Christine
SECTION IV: EXPERIENCES OF ONLINE HEALTH COMMUNITIES AND OF ORGANIZATIONS MOVING TO E-COMMERCE
OVERVIEW
EXPERIENCING EMPATHY ONLINE
Jennifer Preece and Kambiz Ghozati
ORGANIZATIONAL ROLES AND THE SUCCESS OF WEB-BASED CONTINUING MEDICAL
EDUCATION
PROGRAMS
Pamela Whitten, Matt Eastin and David Cook
IMPROVING DIABETES CARE WITH TELECOMPUTING TECHNOLOGY
Richard Street, Jr. and Veronica Piziak
WEB-ENABLED HOSPITALS IN THE UNITED STATES:
INFLUENCES ON ADOPTION PROCESSES
Lauren Eder and Donald Wise
COMPETITIVE COLLABORATION IN AUSTRALIA'S PHARMACEUTICAL INDUSTRY
Elizabeth More and G. Michael McGrath
SECTION V: PUBLIC POLICY EXPERIENCES AND EXPECTATIONS
OVERVIEW
TELEHEALTH: FEDERAL ISSUES AND APPROACHES
Cynthia Baur, Mary Jo Deering and Leslie Hsu
OLD WINE IN SILICON PRESCRIPTION BOTTLES: SOME LEGAL ISSUES,
BENEFITS, AND DISADVANTAGES ASSOCIATED WITH INTERNET PHARMACIES
Barry D. Bayer
HEALTH RECORDS: THEIR UNIQUE SETTING AND CONTENT COMPLICATE SECURITY
AND
PRIVACY ISSUES
James Katz and Philip Aspden
SECTION VI: CONCLUSION
CONCLUDING THOUGHTS
James Katz and Ronald E. Rice
SECTION VII
INDEX
ABOUT THE CONTRIBUTORS